There are a lot of things Amanda Orth of Aurora wants people to know about neurofibromatosis. It affects her four-year old ...

A sunny afternoon filled with the sounds of live music, the aroma of food trucks, and the laughter of children playing on a ...

Michelle Schwettman highlights the challenges of Neurofibromatosis (NF) and the importance of mental health awareness, sharing her daughter’s journey and encouraging compassion during May’s awareness ...

A new study co-led by Mass General Brigham researchers points to a promising new type of auditory brainstem implant (ABI) that could benefit people who are deaf due to Neurofibromatosis type 2 (NF2) ...

Panelists discuss how plexiform neurofibromas in NF1 often emerge in early childhood with progressive growth and symptoms such as disfigurement, pain, and neurologic deficits, noting that rapid ...

The neurofibromatosis type 1 market remains niche, but awareness campaigns, increased diagnoses, and treatment adoption, along with ongoing clinical ...

This story may sound graphic, but what we're about to tell you saved a young Rosedale woman's life. Karla Flores, now 20, ...

In a first-of-its-kind procedure, clinicians at the University of Maryland Medical Center in Baltimore removed a rare spinal tumor through a patient’s eye socket. The patient, Karla Flores of ...

They would remove the spinal tumor through her left eye socket. If the surgical path was not precise to within a few millimeters, Flores could lose all movement below the neck or suffer a fatal ...

They would remove the spinal tumor through her left eye socket. If the surgical path was not precise to within a few millimeters, Flores could lose all movement below the neck or suffer a fatal ...

NF is a genetic disorder that causes tumors to grow on nerve tissues. They can grow anywhere in your nervous system, including on your brain and spinal cord. It can also cause optic glioma, and Lisch ...