There are a lot of things Amanda Orth of Aurora wants people to know about neurofibromatosis. It affects her four-year old ...

A sunny afternoon filled with the sounds of live music, the aroma of food trucks, and the laughter of children playing on a ...

Michelle Schwettman highlights the challenges of Neurofibromatosis (NF) and the importance of mental health awareness, sharing her daughter’s journey and encouraging compassion during May’s awareness ...

A new study co-led by Mass General Brigham researchers points to a promising new type of auditory brainstem implant (ABI) that could benefit people who are deaf due to Neurofibromatosis type 2 (NF2) ...

Panelists discuss how plexiform neurofibromas in NF1 often emerge in early childhood with progressive growth and symptoms such as disfigurement, pain, and neurologic deficits, noting that rapid ...

The neurofibromatosis type 1 market remains niche, but awareness campaigns, increased diagnoses, and treatment adoption, along with ongoing clinical ...